EspeRare foundation
Florence Porte co-founded EspeRare foundation and currently serves as the R&D Director. Previously, Florence held leadership positions at Merck Serono, Centre Léon Berard, and SkyePharma, gaining experience in strategy implementation, clinical project management, and clinical pharmacology. Florence has specialized degrees in Pharmacie clinique oncologique and Immunology and Biotherapies from notable universities.
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EspeRare foundation
EspeRare is a not-for-profit organization established in Switzerland and recognized to be operating in the public interest. In collaboration with patient groups and other key stakeholders, EspeRare focuses on rescuing and repositioning discontinued therapies with high potential to address severe and currently neglected therapeutic needs of children affected by rare genetic diseases. EspeRare is using its pharma R&D expertise and patient-centric model to advance novel treatments for the undeserved patients, thus bringing hope for better future to these children and their families.