EverythingALS
Stephanie Henze has extensive experience in design, clinical study, and strategy leadership in various companies such as EverythingALS, McKinsey & Company, LUNAR Design, Hiemstra Product Development, and more. With a background in Industrial and Product Design from Art Center College of Design, Stephanie has held roles ranging from Senior Director to Senior Designer to Instructor. Stephanie's work includes the development of assessment tools and digital biomarkers in ALS, as well as business development and strategy execution.
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EverythingALS
EverythingALS is a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS. We focus on bringing the ALS community knowledge, open data research and to accelerate treatments for ALS. EverythingALS is a brand of Peter Cohen Foundation, 501(c)(3) founded in 2020. We are an actively growing community of ALS patients and caregivers, collaborating with the leading minds at eminent research institutions, conducting IRB approved research into ALS disease progression. We have the largest study in ALS with over 1,000 participants in less than 14 months. Our study is driven by the need for citizen driven research with open innovation platform in digital biomarkers to detect early diagnosis and prognosis of ALS.