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Global Genes

1 follower

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Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates, and clinical partners.

Industries

Non Profit

Headquarters

Aliso Viejo, United States

Employees

11-50

Links

Org chart

Charlene Son Rigby
CEO
Collapse
Barry Weber
Data Protection Officer & Chief Information Security Officer
Pam Rattananont
VP, Development & Marketing
Kathy O’Connor
Senior Director, Corporate Engagement
Maria Della Rocca
Senior Director, Patient Services
Karmen Trzupek
Senior Director of Scientific Programs
VW
Victoria Weiss
Senior Director, Finance
Teneasha Washington
Diversity, Equity & Inclusion Lead

Board & advisors

Nicole Boice
Founder & Director
Caroline Loewy
Director
Hugh Hempel
Director
Neil Kumar
Director
Christina Hartman
Director
Indu Navar
Director
Lara Bloom
Strategic Advisor
Peter Goodhand
Advisor
Alvin Shih
Advisor
Tim Miller
Advisor
James O’brien
Counil Member
Kris Pierce
Council Member
Atif Qureshi
Cuncil Member
Allyson Lock
Council Member
Rodney Samaco
Council Member
Isaac R. Rodriguez-Chavez
Council Member
Mary McGowan
Council Member
RC
Royze Cachero
Council Member
Betsy Bogard
Director
Wendy Erler
Director
Ilana Fogelman
Director
Simon Frost
Director
Walt Kowtoniuk
Director
David Pearce
Director
John Reynders
Director
Morrie Ruffin
Director
Sukirti Suki Bagal
Scientific Advisory Board Member
Dan Chung
Scientific Advisory Board Member
Wendy Chung
Scientific Advisory Board Member
Scott Demarest
Scientific Advisory Board Member
Rachel Groth
Scientific Advisory Board Member
Jeannette McCarthy
Scientific Advisory Board Member
Steve Rodems
Scientific Advisory Board Member
Eric Sid
Scientific Advisory Board Member
Audrey Thurm
Scientific Advisory Board Member
Ashley Winslow
Scientific Advisory Board Member
Brad Crittenden
Council Member
Sarita Edwards
Council Member
Kim Mclellan
Council Member
Deb Murphy
Council Member
Katie Sarca
Council Member
Tamara Schryver
Council Member
Dave Osterman
Scientific Advisory Board Member

Teams

+23

Advisory and Council Roles

27 people · 0 jobs

Marketing and Communications

2 people · 0 jobs

Patient Services and Support

4 people · 0 jobs

+1

Research and Data Management

5 people · 0 jobs

Community Engagement and Support

2 people · 0 jobs

Leadership Team

2 people · 0 jobs

Offices

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