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National Organization for Rare Disorders

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The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.

Industries

Health Care

Headquarters

Danbury, United States

Employees

11-50

Links

Org chart

Pamela Gavin
Chief Executive Officer
Collapse
Edward Neilan
Chief Medical & Scientific Officer
Kelly Esperias
Chief Strategy & Operations Officer
Norine Schwarzchild
VP, Human Resources

Board & advisors

KH
Kay Holcombe
Chair
DJ
Dennis Jackman
Vice Chair
JP
Jim Palma
Secretary
MP
Mike Porath
Director
PP
Phillip L. Pearl
Director
SJ
Shafali Spurling Jeste
Director
MS
Mark Skinner
Director
LE
Leon Eidelman
Director
SB
Susan A. Berry
Director
LW
Lorna Weir
Director
SS
Sheldon Schuster
Director
TK
Tom Kelly
Director
Steven Mah
Board Member
Alan M. Miller
Board Member

Teams

MP
PP
+8

Human Resources and Compliance

12 people · 0 jobs

+1

Leadership Team

5 people · 0 jobs

Information Technology and Support

4 people · 0 jobs

Offices

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