The Sumaira Foundation
Clarinda Cerejo is an accomplished podcast co-host for "Not Just Patients," promoting patient involvement in healthcare since April 2024. As a Patient Engagement Consultant and EUPATI Fellow, Clarinda collaborates with healthcare organizations to integrate patient perspectives effectively. Current roles include India Ambassador for The Sumaira Foundation, Board Member for the Global Patient Advocacy Coalition, and Management Committee Member for the Rare Disease Research Network. Additionally, Clarinda serves as a Patient Peer Reviewer for Cochrane and a Consultant for the World Health Organization. Prior experience at Cactus Communications spanned various leadership positions, where Clarinda significantly contributed to digital content, academic publishing, and mental health research initiatives. Academic credentials include a Master's in Biotechnology from the University of Mumbai and a recent Executive Education course in Design Thinking from Stanford University.
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The Sumaira Foundation
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The Sumaira Foundation is a 501(c)(3) organization dedicated to generating global awareness of neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody associated disorder (MOGAD), creating communities of support for patients and their caregivers, funding research and patient advocacy. NMOSD is a rare autoimmune disease that affects 10 out of 1 million patients and is oftentimes misdiagnosed as Multiple Sclerosis. The cause is unknown and there is no cure. Our founding philosophy is that heightened awareness will ultimately lead us towards finding a cure. To learn more about NMO and the organization, please visit www.sumairafoundation.org