EverythingALS
Christian Rubio is currently the Executive Director and Head of Business Development at EverythingALS. Previously, they held positions such as Head of Patient Advocacy at Praxis Precision Medicines, Vice President of Strategic Advancement at Global Genes, and Vice President of Marketing at PlatformQ Health. With a background in political communications, international investment banking, and project finance advisory services, Christian has a strong track record in advocating for rare disease patients and caregivers. Their educational background includes an MBA in Marketing and Entrepreneurship from Babson F.W. Olin Graduate School of Business.
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EverythingALS
EverythingALS is a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS. We focus on bringing the ALS community knowledge, open data research and to accelerate treatments for ALS. EverythingALS is a brand of Peter Cohen Foundation, 501(c)(3) founded in 2020. We are an actively growing community of ALS patients and caregivers, collaborating with the leading minds at eminent research institutions, conducting IRB approved research into ALS disease progression. We have the largest study in ALS with over 1,000 participants in less than 14 months. Our study is driven by the need for citizen driven research with open innovation platform in digital biomarkers to detect early diagnosis and prognosis of ALS.